My daughter has Prader-Willi Syndrome. This is part of our story.
Monday, January 24, 2011
So I have been turned on to blogging & I thought it might be a good idea to blog about our journey with PWS. Our youngest daughter was born 2 years ago with this genetic disorder and adjusting to life with PWS has been different and we have yet to hit the difficult spots. As this blog continues on and our daughter grows, we will definately be able to see and remember the ups and downs of our journey.